2008 三月 04, 13:58
他父親拿了一張報紙給他
上面是關於 DM 的訊息...
好幾次了
每當我問他最近你爸媽還有再說什麼嗎
他低頭沉思
緩緩的說: 我爸今天又拿了一份報紙新聞給我看
那你都不說什麼嗎
說了也沒用，妳也知道老人家很固執，他只相信他看到的
他父親看到親戚同袍得了 DM 瞎了、殘了、洗腎了、拖累了家人、需要人照顧
他父親看到一篇又一篇的新聞，關於得了 DM 的遭遇與不幸
然後再拿給他看....
這是他家的溝通模式
也不想說什麼了
隨著年紀越來越大
經歷的事情越來越多
什麼可以相信，什麼又不可以相信
我們都在學習與判斷
都在找一個最好的時間點切入與淡出
報紙會告訴你一則又一則得了 DM 要洗腎、會失明、會截肢的新聞
報紙會決定人生的死生起落?
報紙會預言在往後的人生是誰需要照顧誰?
然後
隨時準備好
面對報紙先前告訴你的一切
失明、洗腎、截肢、分手、苦痛、悲傷
更要隨時準備好
面對報紙未來會揭露的故事
陪伴、結婚、生子、攜手、偕老、喜樂
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看到這麼多人對你的鼓勵，真的只有"感動"兩個字可以形容。愛情這條路上，你們走的或許比別人艱辛，但是，也更刻苦銘心了！加油吧！
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2008 三月 06, 18:08
誠然，高風險不代表一定發生，只是看得人通常不是看這一面。
父母能微笑地看著妳們，或許他們也了解父母在看待子女的心情。只是他們也不是妳。
用同理心去看待，是讓自己寬懷，而這卻無法期待喧人也能有這樣的同理心。
無法讓別人體會的痛，是種挫折，因為這是他人無法撫平的。
而我們所能做的，只是傾聽與了解。
然而，除了李碧雲護理師外，本站的衛教師婉玲（Lassy）也同樣於日前平安生產。努力過，還是可能會有好的緣份的。
2008 三月 06, 17:37
糖尿病不阻斷李碧雲結婚生子的夢
生命力記者／賴雅淳報導1999/6/2
李碧雲是個糖尿病的護理師，同時也是幼年型糖尿病患。這樣身兼護士與病人的雙重身份，讓李碧雲每當面對感情受困的病人時，總是要提醒自己理性、客觀的面對問題，指點迷津；然而，當她自己的感情翩然乍到時，她卻躲得遠遠的，甚至用最決裂的方式，企圖斬斷初萌芽的愛苗。
「那時之所以選擇逃避，是因為我不想讓我的糖尿病成為他的負擔和包袱。」憶起和先生婚前那段刻苦銘心的愛戀，李碧雲感慨萬千的說。
讀護專的時候，在老師和同學的眼中，李碧雲是個健康、活躍的好學生，不但是網球校隊，棋弈高手，更是保送三軍總醫院的高材生。因為要在三總工作必須有個保人，所以她的朋友就到軍中，找了當時正在值班的軍官幫忙，而這位軍官憑著助人的義氣，毫不考慮的就在契約的保人下簽了字，然而他卻萬萬沒想到，這張契約後來會變成結婚證書。「我先生常開玩笑說：我保你就是保一輩子！」李碧雲甜蜜的說。
一張小小的契約，因緣際會的牽起李碧雲和他先生的紅線。剛開始，李碧雲和她先生只是普通朋友，直到她因糖尿病住院時，他先生出於關心，到病房探視她，兩人才有了進一步的發展。「我媽聽到我得糖尿病時，第一句話就問醫生：我女兒還會生小孩嗎？」媽媽的問話，以及發病的衝擊，讓李碧雲原本低落的心情跌到谷底。
他先生當初看到李碧雲從一個原本健康的護士，變成一個需要別人照顧的病人，便決定天天來照顧她。在朝夕相處的照護下，很快的，愛苗就在他倆的心中慢慢的滋長。病房的醫生看在眼裡，於是便決定找他先生約談，把所有最重最重的話都丟給他，因為李碧雲得的是幼年型糖尿病，她必須終生施打胰島素，這個病會遺傳、會有許多的慢性併發症，不容易懷孕……，為的就是要讓他知道，和糖尿病患者談戀愛要考慮清楚。「我先生聽了之後真是嚇壞了，但他每天還是來看我，就是不說話。」李碧雲清楚的感受到他先生的改變，也清楚的知道，自己的病是他倆感情上的屏障，於是就在不忍心牽累對方的痛苦下，她選擇用逃避、疏遠，來結束這段剛萌芽的情絲。
病好之後，她想盡辦法迴避他先生，不接他的電話，把他的信件原封不動的退還。她先生因為她這樣的絕情，感到萬分的沮喪，於是請了一個禮拜的假，放逐自己遊台灣。他們倆雖然用盡力氣斬斷情絲，卻切不斷早已註定的姻緣。他的家人想盡辦法找到李碧雲，要她鼓勵頹喪的他，於是他倆就在很多人的撮合下，終於面對面的坐下來聊一聊；後來他們又聯絡了，又變得像以前一樣無話不談。
於是，他倆就在親友的祝福聲中，踏上紅毯的另一端，讓這段崎嶇波折的情感，畫上圓滿的句點。婚後，糖尿病不但沒有為李碧雲的新生活帶來困擾，更可貴的是，因為她努力的控制病情，把自己照顧得不需別人多費心，讓她成為婆婆疼、大伯誇的好媳婦。「雖然我不會刻意在家人面前打針，但是我在房間裡測血糖、打胰島素時，我都不會關門。」也因為她用這樣健康、自然的心態面對家人，使得家人對幼年型糖尿病有了更多的認識和瞭解。「有一次，我在炒菜時發生低血糖，幸好嫂嫂意識到我不對勁，立刻拿冰糖給我吃。這小小、迅速、立即的動作，卻是救了我一命。」
嫁到這樣一個肯接納她的病，且氣氛融洽的大家庭，李碧雲直說是她最大的福氣。然而，總有一個小小的缺憾困擾著她，那就是他們不生小孩，這是她們夫妻兩人共同的默契，同時也是家人之間心知肚明的秘密。「懷孕對糖尿病婦女而言，是最大的挑戰，因為要擔心遺傳和併發症的問題，所以在婚前我們就說好不生小孩的。」李碧雲用遺憾的口吻訴說著，不過，她接著又無奈的說：「唉！人算不如天算，現在我已是兩個孩子的媽了，這都要歸功於避孕失敗。」
懷孕初期，因做身體檢查時多照了幾張X光片，讓她考慮把小孩拿掉；而為了蘊育健康的下一代，她忍受懷孕使血糖大亂的不適，努力的把血糖控制到完美值；懷孕期間，她又碰到胎兒過大、或可能胎死腹中、或產下畸形兒的衝擊，讓她花加倍的時間檢查胎兒的問題；生產完，她要忍受因胎兒過大，造成小孩手臂骨折，以及小孩一出生就要打點滴等種種的心疼……。終於，她還是勇敢的熬了過來，如今兒子上小學，女兒唸幼稚園，美滿的婚姻到此也總算是真正的開花結果了。
曾經，談戀愛、結婚生子是李碧雲不敢奢望的夢；如今，她擁有愛她的丈夫、兩個可愛的稚子，以及一個和樂融融的大家庭。李碧雲以誠懇的語氣說出她的期盼：「幼年型糖尿病人，一樣有資格談戀愛、結婚生子，只要你能照顧好你自己，那你擁有的權利和幸福就不會別人少。」
2008 三月 05, 09:10
高風險並不代表必然發生.
2008 三月 04, 18:03
謝謝....
我父母一直微笑著看著我和他
因為他們知道他的父母也一樣的心急與煩憂
同理心是一件多麼困難的事情
因為遇到了
我們才知道要學習同理心去看待周遭的人事物
卻不能要求別人也用同理心看待我們
2008 三月 04, 17:16
如果，這是一篇散文，它會是一篇非常好的佳作。
只是它是心情的描摹，短短的語言，傳達了真，卻又沉痛。
JS和Ch2468說得好，然而，對於事實，卻是無力…
畢竟，讀的人不是我。
只是，有時候想，如果我是那位父親，我會用什麼角度來看這一則新聞？
是理性？還是以一個家長的心情？
這是一個很難的心理糾結，想解開，不是不可能，但，很難。
氣餒的是，對於可以感同身受的遭遇，竟也不知該是正向的鼓勵還是感同身受般地安慰…
放手，不捨；想抓著，卻又似風箏般，隨時掙脫而遠颺。
然而，抓與放之間，如果沒有兩人的同心努力，或許，當它是個美麗的回憶，也好！
2008 三月 04, 16:59
漸漸地我發覺到...他們習慣只用「情緒」去面對問題,但卻少了一份「冷靜的心」去面對解決問題。
拿一篇篇負面報導?或同袍們反對聲浪?來指責我們IDDM不好,著實令人感到無力。這種感覺就好像你到綠營裡去做民調,人人聽到馬○○就幹攪,或者到藍營裡問謝○○如何,結果也是人人搖頭。可是,靜下心來想,馬或謝兩人真的都像媒體報導有那麼多問題嗎?或許是?或許不是?
Belle,我想,先不要急著去點燃這些導火線,妳的他~夾在中間是一種為難,他在當下沒說什麼,或許是他用一種緩和方式緩解當時的衝突,雖然,這並不能馬上解決問題,但至少,他一直站在妳身邊,就該為他鼓勵鼓勵。
我要為Belle～加油!加油!
也要為Belle的他～鼓勵!鼓勵!
也想跟Belle的他的家人們說～
「你們可以找到很多負面意見來說DM不好,
而我也可以舉證無數IDDM在全世界都家庭事業有成啊！
我的人生不因你們大聲或強勢就會變黑白，
我用什麼來粉碎你們無知的咀咒啊？？
"現在"把血糖控制好，就是對"未來"最大的保障！
50年後，等著你們來驗證看看囉～」
2008 三月 04, 14:44
水 能載舟.亦 能覆舟.
可惜的是 每當引史為鑑 卻又重蹈複轍
當報紙成為預言書 未來即成為歷史簿
原來 多數的人走的是 傳統復古風
像 前衛原創性的風格
只能蹲在角落 等待被發覺......
進化論 變成 化進論時 只能成為迂腐的一灘死水.